As you all may know, I’m on a journey of healing from past traumas. I’m seeking to learn why I do things the way that I do, to reframe my thinking (the Bible calls this taking every thought captive, and making it obedient to Christ), and to move forward with my life in a more freeing way where the trauma doesn’t affect me as much. Sometimes God gives me words of wisdom, that I like to write down and save. I remember one such nugget of wisdom given to me that I would like to share. “It’s hard to see the beauty in the ashes when you are in the midst of the fire, but we must trust that God is there with us, and will keep His promises.” It’s hard to learn the lesson, when you are in the middle of the trial. Sometimes, it’s only when you look back at it, that you realize what that lesson was. I have had one such moment recently.
For more than 3 1/2 years I have dealt with extreme digestive issues. My primary doctor did some blood work, but didn’t find anything, and sent me to a gastroenterologist. The gastroenterologist did an endoscopy, and a colonoscopy. Endoscopy showed mild gastritis, and the colonoscopy showed possible celiac disease. The doctor did blood work for celiac. The labs came back positive for celiac disease, but 3 weeks later I still hadn’t heard anything from my doctor. I messaged him, and his response was, “oh yeah it appears you have celiac disease. Go gluten free.”, and that was the end of it. To me, that wasn’t extremely helpful. I had to do my own research to know exactly what gluten was, and what foods contained gluten. By this time I had been dealing with these digestive issues for a year and a half. My thoughts on this were, if he wasn’t going to be helpful, then I wasn’t going to see him anymore. I went completely gluten free, but the digestive symptoms didn’t budge. About a year later I decided to try a different gastroenterologist, and made an appointment. I saw the nurse practitioner, who did some tests, and finally told me she didn’t know what was going on, and I needed to see the doctor. I made an appointment with the doctor, but ended up with Covid at the time I was supposed to see him, so I had to reschedule. Instead of rescheduling me with the doctor, they rescheduled me with the nurse practitioner, again my thoughts were she wasn’t helpful so I’m not going to see her, and I cancelled the appointment. So now, a year later, I decided to give her one more try, but I went in armed with my own research, and my own thoughts on what was causing my issues. I told her what I thought it was, and asked to be tested, and she agreed. I got the test results back earlier this week. They were positive for exocrine pancreatic insufficiency. Exocrine pancreatic insufficiency is where the pancreas doesn’t make enough digestive enzymes, so the body cannot properly digest food, or absorb nutrients from that food. So on top of the damage to my intestines done by the celiac disease, which makes nutrient absorption difficult, I now have an issue with not enough digestive enzymes, which makes nutrient absorption difficult. In the past 3 1/2 plus years, I have become malnourished. My body couldn’t absorb the nutrients, and so many of my nutrient levels are low. Thankfully the treatment is simple, I have to take prescribed pancreatic digestive enzymes every time I eat.
So what does this have to do with lessons learned? Once I got the lab results confirming what I already knew, I got mad. Why didn’t any of my medical team think to check for this? Then I got to thinking about several other diagnoses, the celiac disease, and also one of the autoimmune diseases that really affects my life, Wegener’s granulomatosis polyangitis. All of them took several years to diagnose, and the Wegener’s granulomatosis polyangitis was misdiagnosed for many years before I got a correct diagnosis. That made me ever madder. Why did I have to suffer for so many years because my medical team didn’t think to check for these things? I look back over the years of health struggles, and see where my doctors have abandoned me, but then I realized that I have also abandoned me. When the doctor wasn’t helpful, I stopped seeing him or her. When they wouldn’t listen, I gave up. I didn’t stand up for myself, and I didn’t advocate for myself. This made the time to a correct diagnosis even longer. Maybe, if I wouldn’t have abandoned myself so much, if I would have advocated for myself more often, I wouldn’t have suffered for so long. This doesn’t excuse the medial personnel not thinking outside the box, or even digging deeper into the box, at all. It just shows me how I have felt abandoned so often in my life, that I learned to just give up, and abandon myself also. I didn’t notice this while I was going through it, but as I sit, and look back over the years, I can see, plainly, the times that I abandoned myself. This is one thing that I’m going to work on in the future. I’m going to work on advocating for myself more, standing up for myself more, and asking for help when I need it more. Will I be perfect at it? Absolutely not. But I do hope to see lots of progress in it.
I had a therapy session this week, and my therapist and I were talking about this revelation of abandoning myself. We dug through this a bit, discussing how I have not only abandoned myself in my medical/health journey, but also in my relationships. My mentality has been, I’m going to leave them before they leave me, or I’m not going to be a burden by asking for what I need, or advocating for myself, so they don’t leave me. I left that session with my muscles tensed up, and hurting, and with a migraine. Something had definitely struck a nerve. I had a lot to do that day, with a bit of driving, and when I drive I like to either listen to music, listen to a book or podcast, mostly I like to have quiet so that I can think and pray. I don’t like to do a lot of driving, but driving is when I can get some good thinking, and praying done. I did a bit of listening to praise music, and a bit of thinking and praying during my driving that day. While I was listening to music, the song Breakthrough by Mandisa came on, and I realized that this was my breakthrough. I knew I had an abandonment issue, but it never occurred to me, that this wasn’t just a little abandonment issue, it was a huge abandonment issue, and from it stems the majority of the trauma issues in my life. When I got home, I sat down with my journal, and started writing out all the times I felt abandoned in my life. Starting at a very early age, at least 3 years old, probably younger, I have been abandoned, whether it be physically, or emotionally. I’m not going to write all of them, but I will tell you there is a lot. No wonder I have such a big abandonment issue in my life.
For 2026, I have decided, through prayer, that my overall theme is self-care, and each month will have a different word/theme to focus on. January was joy/distractions, I believe that February will be abandonment/advocacy. I’m going to work on dissecting my past to realize all the times I felt abandoned, recognizing how/when I’m abandoning myself, and advocate for myself. I’m going to work on asking myself what I need, then giving myself what I need, and asking for help when it’s needed. It’s going to be hard, but it’s what is needed to become a more authentic me.